Our first meetup of our recently founded group
Probably the biggest deficit of health care systems is that they do not recognize patients as active agents and most vital ingredients in their health management. Patients consult doctors, undergo clinical examinations, try different treatments and research for medical information relevant to their conditions(s).
Many patients become skilled and knowledgeable about the every day dynamics of their condition and usually end up with an extensive record of medical data. This accumulated knowledge is an invaluable source of information for other people with similar health problems. It may save them time, money and suffering if appropriate diagnosis or treatment can be found more quickly.
After all, medicine is an empirical science and as such medical decisions should be based on knowledge and evidence generated from data.
If only all this knowledge and data were freely available…